Chronic traumatic encephalopathy (CTE). Recent years have seen popular culture and political interest in the degenerative brain condition – consider Ridley Scott’s 2015 film Concussion, the 2009 GQ profile of forensic pathologist Bennet Omalu, or recent congressional hearings about concussions – as it related to sports, but its association with military service is uncommon.
Omalu, who first identified CTE in the brains of deceased former NFL players, believes CTE is often misdiagnosed as post-traumatic stress disorder. This misdiagnosis, he believes, contributes to homelessness among veterans.
Enter Dave Collins, a former Navy SEAL who took his own life on March 12, 2014. His final text message to his wife Jennifer Collins read, “So sorry baby. I love you all.”
Dave had shot himself in his truck a few miles away.
Jennifer had seen her husband’s condition worsen over time. Hunger for answers compelled her decision to donate Dave’s brain to research. Perhaps she and her late husband might be able to help others suffering from the same or similar afflictions.
Below is an excerpt from Corrine Reilly’s special story in The Virginian Pilot.
On the afternoon of March 12, 2014, Jennifer Collins checked her phone and found a message from her husband, Dave Collins, a retired Navy SEAL. He’d texted to say that she should pick up their son from kindergarten, and then this: “So sorry baby. I love you all.”
Hours later, two police officers showed up at their house in Virginia Beach with news that Dave, 45, had shot himself in his truck a few miles away. Although Jennifer had held out hope for any other explanation, she also knew the moment she read it what the text meant. For months, she’d watched Dave disintegrate into a man she hardly knew. She’d tried everything, but nothing had alleviated his severe insomnia, intense anxiety and worsening cognitive problems.
“I was so frustrated that I couldn’t find the answers he needed,” she remembers.
It was out of that frustration, she says, that the idea came to donate his brain to research. She was still answering a detective’s questions in her living room that night when she blurted it out: Tell the medical examiner to do whatever is needed to preserve Dave’s brain. She hoped the decision might help others struggling with what everyone believed explained Dave’s afflictions – traumatic brain injury and PTSD, the most common wounds of the post-9/11 wars.
“That’s what he’d been diagnosed with,” Jennifer says. “I had no reason to think there was anything else to find.”
In June, three months after Dave died, a letter came from the doctor who examined his brain. It left Jennifer stunned.
What had caused Dave’s unraveling was chronic traumatic encephalopathy, the degenerative brain disease best known for affecting former professional football players. Associated with repeated head trauma, CTE causes neurological decay, has no known treatment and can be diagnosed only at autopsy. It is linked to memory loss, personality changes, depression, impulsivity, dementia and suicide.
While more attention has been paid to CTE among athletes, Dave is one of dozens of veterans who have been diagnosed with the disease in recent years. The cases, along with new research on the effects of exposure to blasts, suggest that CTE may be as directly linked to military service as it is to professional football.
“I’m positive that it’s drastically underdiagnosed in the military,” says Bennet Omalu, the forensic pathologist who first identified CTE in the brains of deceased former NFL players and is portrayed in the movie “Concussion.” Omalu believes the disease is often misdiagnosed as PTSD and could be an underlying factor in homelessness among veterans.
The only reason more veterans have not been diagnosed, he and others say, is because the disease is not commonly looked for. In Dave’s case, CTE would never have been identified if Jennifer had not thought to donate his brain.
“In my opinion,” Omalu says, “this is more important than the NFL, because many more people are involved in the military.”
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